Dear Heather, Chris, and Lynette: I worked with Lynette several years ago at AJ & C Garfunkel and was fortunate to have met Wesley on many occasions. He would come to the office and stay with Lynette and it was always a highlight of my day when he was there. He was always happy, curious, and full of energy. Wesley was a sweet, beautiful boy with a great smile and a wonderful personality. I just found out about his passing today, and am sorry I was unable to attend his service. I am truly sorry for your loss, but please know that the people he touched are better for having met Wesley. My thoughts are with you and your entire family.

- Tom Vetter, savannah, GA

Pardon my intrusion on such a personal page. But, this came up as a Google cache when typing my name as it grabbed my attention. I was literally pulled to tears. Please, as a stranger. Let me say that I am truly saddened by your loss. I haven't prayed in quite a few years but I will continue praying for your family to heal.

- Tyler Stone, New York, NY

Dear Heather, Chris, and Noah, Wesley was the best!! He touched the hearts of so many - and will be remembered by all for his strength, courage, and love of life.

- Wanda Lowery, Savannah, GA

Dear Heather, Chris and Noah and the rest of your family, I am so sorry to hear of the passing of Wesley. Although we are comforted to know he is finally free of pain; this does not take away the sting of death, especially your child. He was such a courageous, happy boy. You all took great care of him, now he is in God's hands. My prayers go out to you and all who were close to him. Kathy Lariviere Ma.

- Kathleen Lariviere, Ware, MA

My deepest sympathies for your loss, your family is in my prayers. Michele an EB mom

- Michele Disco, , NY

Chris and Heather, It was always a joy to see Wesley. My thoughts and prayers are with you.

- JASON TAYLOR, BLOOMINGDALE, GA

Dear Stone Family, Though you probably don't know us, we are distantly connected through Candace. We knew Wesley through her. You have been in our thoughts and prayers since we heard the news on Christmas Eve.We are so sorry for your loss, you have our deepest sympathy.

- Timothy and Kathie Roberts, Guyton, GA

Dear Heather & Family, Im so sorry to hear about your terrible loss especially at this time of the year. Wesley had a very good life and will be sadly missed. I will continue to keep all you in our thoughts and prayers.

- Jessica & Jason Rockett, Savannah, GA

Dear Stone Family, You have been in my thoughts and prayers since I heard the news on Christmas Eve. My heart is aching for you. I know the pain all too well. Our sons are together in heaven pain free. I hope this gives you some comfort as it did for me. I am so sorry, Sue Ostrander

- Sue Ostrander, Great Meadows, NJ

Dear Stone Family - Wesley was such a blessing to everyone who crossed his path and his memory will live on in our hearts. It is such a joyous thought that he is finally pain free and in the presence of God. Your family will be in our prayers.

- Naomi Brist, Savannah, GA

Dear Heather,Chris,and Noah, God Bless little Wesley and may he watch over you and comfort you in this time. You are in our prayers. Love Janet, Keenan, Katie and Tyler Ward

- Janet Ward, Williamsburg, VA

Dear Wesley, I didn't get to meet you, but I felt like I knew you whenever I would listen to your grandpa, Tom. He always talked about your big smile and couragous spirit. Hope your spirit will help lift up those who love you. God's speed to you, Wesley, on your new beginning, and my deepest sympathy to your family, Beverly Bodnar Tom's co-worker

- Beverly Bodnar, Guyton, GA

Heather and Chris, Mere words seem so inadequate at a time like this, but please know our heartfelt condolences are with you all. Your love for Wesley was evident from the moment we heard you were expecting him. It grew each and every day. We hold immense respect and admiration for you as loving, devoted parents, and for Wesley as a very brave little boy. May God bless and keep you both, and Noah. With much love and many prayers, Carter & Stephanie Hollis

- Stephanie Hollis, Greenville, SC

Dear Heather, Chris and Family, Everyone in the Day Surgery Center, OR, and PACU held a special place in their hearts for Wesley. In spite of everything he had to endure he always tried to be so strong and he was!! I remember the last time I took care of him and he was being a little shy about going to the OR and Heather you asked him if he was being shy and he shook his head no and said his stuffed animal wasI can't remember what he named him. We should all try to follow his example when met with life's hard trials. God Bless Wesley and all of your family at this time. Susan MorganDay Surgery

- Susan Morgan, Savannah,, GA

Thanks Wesley, for reminding this old coach what living life is all about. I looked forward to seeing you in class when P.E. wasnt something you always wanted to do. You tried harder than anyone else and just being there with me was a blessing for me. I will always remember playing hockey, catching and throwing, and every part of you Wesley. I know you are well now and I will never forget out time together. Thanks for sharing your life with me and my family. I love you SUPERMAN. Larry 'Coach' Adkins

- Coach Adkins, Brooklet, GA

Dear Wesley, Just wanted to thank you for being my friend. I remember when i used to be a lunch helper, and you always had a smile for me and a nice hello. I will miss seeing you in the lunch room at school, but I am happy that you are with Jesus now and that he made you all better. I will never forget my special friend at Southwest Elementary. Even though my daddy works there, I enjoyed being there with you at lunch cause i got to see you more than daddy. I will miss you buddy.. Natalie Adkins

- Natalie Adkins, Brooklet, GA

Chris & Heather, our thoughts go out to you and your entire family. May you both find strength in Jesus through this difficult time. We will be keeping you all in our prayers. I hope it brings peace to you both to know that Wesley is well and in heaven playing with other children. With much love, Simon & Tracy Bloor

- Simon & Tracy Bloor, Richmond Hill, GA

Heather, I am thankful that I had the privilege to get to know Wesley. He was a wonderful young man with courage and strength beyond his years. You and Chris have done a wonderful job as parents. I pray that the Lord will bless y'all with peace and comfort. Focus on the good memories and the fact that he is no longer in pain. Please let me know if there is anything that I can do.

- Sherri Cunningham, Savannah, GA

Dear Heather and family, I was so sorry to hear of Wesley's passing. He fought a courageous battle everyday of his life. He was a super hero in his own way. I pray that God will comfort you and your family as only He can do. May He give you all the strength and peace that you will need during this difficult time. I will be keeping you in my thoughts and prayers.

- Connie Holland, Wilmington, NC

Christopher, Heart are hurting, tons of tears are trailing, and memories are muddling minds. I feel for you. May peace and joy return to you, your wife, and family soon through God's love!

- Wendy Hendricks, Jesup, GA

Heather & Chris,I am sorry for your loss of Wes-bug. He had more determination & heart than most healthy people. You were fine caring parents & did a wonderful job. My prayers are with you & your family. He is looking down on all of us now, with his 'SUPERMAN' stance in no more pain waiting to see us all again. It was my pleasure working with him at the center. May GOD bless you all. Jane B.Clarke

- Jane B. Clarke, Savannah, GA

I am so sorry for your loss. Savannah Pediatric Surgery and Gastroenterology sends their thoughts and prayers. Jessica Richard, Medical Assistant

- Jessica Richard, , GA

Our condolences to the Stone family. Your all in our thoughts and prayers and Wesley will forever remain in our hearts as well.

- Shannon Evans, Petal, MS

Heather & Family, Our thoughts and prayers are with you during this difficult time... William, Amanda & Walker Emley

- Amanda Emley, Statesboro, GA

Heather & Family, Our thoughts and prayers are with you during this difficult time... William, Amanda & Walker Emley

- Amanda Emley, Brooklet, GA

Heather & Family, Our thoughts and prayers are with you during this difficult time... William, Amanda & Walker Emley

- Amanda Emley, Brooklet, GA

I am so sorry for the loss of your brave, beautiful boy. Our thoughts and prayers are with you.

- Logan, Baton Rouge, LA

I am so terribly saddened by the loss of your beautiful, adorable, and amazing little boy. My heart, along with the hearts of so many others, goes out to you. Wesley received all that was possible to him, with no stone unturned, because of your great love and devotion to him. In the words of the poet, Tagore: 'A death is not the extingquishing of a light, but the putting out of the lamp because the dawn has come.'

- Stefanie Putkowski, RN, National Organization for Rare Disorders, ,

Wes-bug, I will not focus on your death. But rather on how you lived. With courage-determination- strength. You truly are the superman. And will always remain in my heart.

- Missy Sailer, Bluffton, SC

One of the best parts of my job is getting to meet so many wonderful people from all over the country, especially the courageous families and the amazing children and adults who live with this horrible disease. A good day is when we can help, a bad day is when we feel helpless. My heart goes out to Heather and the rest of the family and Wesley will always be missed. Sincere Condolences from all of us at DebRA and myself. Sincerely, Pennie Cannon

- Pennie Cannon, New York, NY

So, so sorry for your loss. I had the pleasure of meeting Wesley at the PCC in Nashville in 2006. Such a sweet, beautiful, charming little guy. We lost my neice Sadie Haley in Jan 2005 from JEB-H. I will be praying for your family. Love, Kimberly

- Kimberly Hong, Greensboro, GA

I'm so sorry if their is anything you need please let me know.

- Missy Aluizo, Pooler, GA

Heather, My heart breaks for you and your family. Please get in touch with me if there is anything that I can do. I am praying for you all. With love, Pam - mom to Cole

- Pam Wooten, Martinez, GA

To the Stone family- My family was honored to have met Wesley through the NC EB support group. We are thinking of you during this time and pray that you find peace. Please do not hesitate to contact us if there is anything we can do to help.

- Erica Price, mother of Mercedes, Myrtle Beach, SC

I'm on the EB list and the mom of 3 angels, 2 with EB. You all are in my thoughts and prayers. If you ever need to talk feel free to email. I am so sorry for your loss. Susan Tom

- Susan Tom, Fairfield, CA

Dear Heather, Chris, and Lynette: I worked with Lynette several years ago at AJ & C Garfunkel and was fortunate to have met Wesley on many occasions. He would come to the office and stay with Lynette and it was always a highlight of my day when he was there. He was always happy, curious, and full of energy. Wesley was a sweet, beautiful boy with a great smile and a wonderful personality. I just found out about his passing today, and am sorry I was unable to attend his service. I am truly sorry for your loss, but please know that the people he touched are better for having met Wesley. My thoughts are with you and your entire family.

- Tom Vetter, savannah, GA

Pardon my intrusion on such a personal page. But, this came up as a Google cache when typing my name as it grabbed my attention. I was literally pulled to tears. Please, as a stranger. Let me say that I am truly saddened by your loss. I haven't prayed in quite a few years but I will continue praying for your family to heal.

- Tyler Stone, New York, NY

Dear Heather, Chris, and Noah, Wesley was the best!! He touched the hearts of so many - and will be remembered by all for his strength, courage, and love of life.

- Wanda Lowery, Savannah, GA

Dear Heather, Chris and Noah and the rest of your family, I am so sorry to hear of the passing of Wesley. Although we are comforted to know he is finally free of pain; this does not take away the sting of death, especially your child. He was such a courageous, happy boy. You all took great care of him, now he is in God's hands. My prayers go out to you and all who were close to him. Kathy Lariviere Ma.

- Kathleen Lariviere, Ware, MA

My deepest sympathies for your loss, your family is in my prayers. Michele an EB mom

- Michele Disco, , NY

Chris and Heather, It was always a joy to see Wesley. My thoughts and prayers are with you.

- JASON TAYLOR, BLOOMINGDALE, GA

Dear Stone Family, Though you probably don't know us, we are distantly connected through Candace. We knew Wesley through her. You have been in our thoughts and prayers since we heard the news on Christmas Eve.We are so sorry for your loss, you have our deepest sympathy.

- Timothy and Kathie Roberts, Guyton, GA

Dear Heather & Family, Im so sorry to hear about your terrible loss especially at this time of the year. Wesley had a very good life and will be sadly missed. I will continue to keep all you in our thoughts and prayers.

- Jessica & Jason Rockett, Savannah, GA

Dear Stone Family, You have been in my thoughts and prayers since I heard the news on Christmas Eve. My heart is aching for you. I know the pain all too well. Our sons are together in heaven pain free. I hope this gives you some comfort as it did for me. I am so sorry, Sue Ostrander

- Sue Ostrander, Great Meadows, NJ

Dear Stone Family - Wesley was such a blessing to everyone who crossed his path and his memory will live on in our hearts. It is such a joyous thought that he is finally pain free and in the presence of God. Your family will be in our prayers.

- Naomi Brist, Savannah, GA

Dear Heather,Chris,and Noah, God Bless little Wesley and may he watch over you and comfort you in this time. You are in our prayers. Love Janet, Keenan, Katie and Tyler Ward

- Janet Ward, Williamsburg, VA

Dear Wesley, I didn't get to meet you, but I felt like I knew you whenever I would listen to your grandpa, Tom. He always talked about your big smile and couragous spirit. Hope your spirit will help lift up those who love you. God's speed to you, Wesley, on your new beginning, and my deepest sympathy to your family, Beverly Bodnar Tom's co-worker

- Beverly Bodnar, Guyton, GA

Heather and Chris, Mere words seem so inadequate at a time like this, but please know our heartfelt condolences are with you all. Your love for Wesley was evident from the moment we heard you were expecting him. It grew each and every day. We hold immense respect and admiration for you as loving, devoted parents, and for Wesley as a very brave little boy. May God bless and keep you both, and Noah. With much love and many prayers, Carter & Stephanie Hollis

- Stephanie Hollis, Greenville, SC

Dear Heather, Chris and Family, Everyone in the Day Surgery Center, OR, and PACU held a special place in their hearts for Wesley. In spite of everything he had to endure he always tried to be so strong and he was!! I remember the last time I took care of him and he was being a little shy about going to the OR and Heather you asked him if he was being shy and he shook his head no and said his stuffed animal wasI can't remember what he named him. We should all try to follow his example when met with life's hard trials. God Bless Wesley and all of your family at this time. Susan MorganDay Surgery

- Susan Morgan, Savannah,, GA

Thanks Wesley, for reminding this old coach what living life is all about. I looked forward to seeing you in class when P.E. wasnt something you always wanted to do. You tried harder than anyone else and just being there with me was a blessing for me. I will always remember playing hockey, catching and throwing, and every part of you Wesley. I know you are well now and I will never forget out time together. Thanks for sharing your life with me and my family. I love you SUPERMAN. Larry 'Coach' Adkins

- Coach Adkins, Brooklet, GA

Dear Wesley, Just wanted to thank you for being my friend. I remember when i used to be a lunch helper, and you always had a smile for me and a nice hello. I will miss seeing you in the lunch room at school, but I am happy that you are with Jesus now and that he made you all better. I will never forget my special friend at Southwest Elementary. Even though my daddy works there, I enjoyed being there with you at lunch cause i got to see you more than daddy. I will miss you buddy.. Natalie Adkins

- Natalie Adkins, Brooklet, GA

Chris & Heather, our thoughts go out to you and your entire family. May you both find strength in Jesus through this difficult time. We will be keeping you all in our prayers. I hope it brings peace to you both to know that Wesley is well and in heaven playing with other children. With much love, Simon & Tracy Bloor

- Simon & Tracy Bloor, Richmond Hill, GA

Heather, I am thankful that I had the privilege to get to know Wesley. He was a wonderful young man with courage and strength beyond his years. You and Chris have done a wonderful job as parents. I pray that the Lord will bless y'all with peace and comfort. Focus on the good memories and the fact that he is no longer in pain. Please let me know if there is anything that I can do.

- Sherri Cunningham, Savannah, GA

Dear Heather and family, I was so sorry to hear of Wesley's passing. He fought a courageous battle everyday of his life. He was a super hero in his own way. I pray that God will comfort you and your family as only He can do. May He give you all the strength and peace that you will need during this difficult time. I will be keeping you in my thoughts and prayers.

- Connie Holland, Wilmington, NC

Christopher, Heart are hurting, tons of tears are trailing, and memories are muddling minds. I feel for you. May peace and joy return to you, your wife, and family soon through God's love!

- Wendy Hendricks, Jesup, GA

Heather & Chris,I am sorry for your loss of Wes-bug. He had more determination & heart than most healthy people. You were fine caring parents & did a wonderful job. My prayers are with you & your family. He is looking down on all of us now, with his 'SUPERMAN' stance in no more pain waiting to see us all again. It was my pleasure working with him at the center. May GOD bless you all. Jane B.Clarke

- Jane B. Clarke, Savannah, GA

I am so sorry for your loss. Savannah Pediatric Surgery and Gastroenterology sends their thoughts and prayers. Jessica Richard, Medical Assistant

- Jessica Richard, , GA

Our condolences to the Stone family. Your all in our thoughts and prayers and Wesley will forever remain in our hearts as well.

- Shannon Evans, Petal, MS

Heather & Family, Our thoughts and prayers are with you during this difficult time... William, Amanda & Walker Emley

- Amanda Emley, Statesboro, GA

Heather & Family, Our thoughts and prayers are with you during this difficult time... William, Amanda & Walker Emley

- Amanda Emley, Brooklet, GA

Heather & Family, Our thoughts and prayers are with you during this difficult time... William, Amanda & Walker Emley

- Amanda Emley, Brooklet, GA

I am so sorry for the loss of your brave, beautiful boy. Our thoughts and prayers are with you.

- Logan, Baton Rouge, LA

I am so terribly saddened by the loss of your beautiful, adorable, and amazing little boy. My heart, along with the hearts of so many others, goes out to you. Wesley received all that was possible to him, with no stone unturned, because of your great love and devotion to him. In the words of the poet, Tagore: 'A death is not the extingquishing of a light, but the putting out of the lamp because the dawn has come.'

- Stefanie Putkowski, RN, National Organization for Rare Disorders, ,

Wes-bug, I will not focus on your death. But rather on how you lived. With courage-determination- strength. You truly are the superman. And will always remain in my heart.

- Missy Sailer, Bluffton, SC

One of the best parts of my job is getting to meet so many wonderful people from all over the country, especially the courageous families and the amazing children and adults who live with this horrible disease. A good day is when we can help, a bad day is when we feel helpless. My heart goes out to Heather and the rest of the family and Wesley will always be missed. Sincere Condolences from all of us at DebRA and myself. Sincerely, Pennie Cannon

- Pennie Cannon, New York, NY

So, so sorry for your loss. I had the pleasure of meeting Wesley at the PCC in Nashville in 2006. Such a sweet, beautiful, charming little guy. We lost my neice Sadie Haley in Jan 2005 from JEB-H. I will be praying for your family. Love, Kimberly

- Kimberly Hong, Greensboro, GA

I'm so sorry if their is anything you need please let me know.

- Missy Aluizo, Pooler, GA

Heather, My heart breaks for you and your family. Please get in touch with me if there is anything that I can do. I am praying for you all. With love, Pam - mom to Cole

- Pam Wooten, Martinez, GA

To the Stone family- My family was honored to have met Wesley through the NC EB support group. We are thinking of you during this time and pray that you find peace. Please do not hesitate to contact us if there is anything we can do to help.

- Erica Price, mother of Mercedes, Myrtle Beach, SC

I'm on the EB list and the mom of 3 angels, 2 with EB. You all are in my thoughts and prayers. If you ever need to talk feel free to email. I am so sorry for your loss. Susan Tom

- Susan Tom, Fairfield, CA